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Stephen Hawking

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Celebrity Health Story

How Stephen Hawking Manages ALS (Motor Neuron Disease)

ALS (Motor Neuron Disease)

Theoretical physicist Stephen Hawking was diagnosed with ALS at 21 and given 2 years to live. He lived until age 76, revolutionized physics, and became the world's most famous advocate for the possibility of living with severe disability.

"However difficult life may seem, there is always something you can do and succeed at."

— Stephen Hawking, Stephen Hawking, *My Brief History*, 2013

Stephen Hawking was 21 years old when he was diagnosed with amyotrophic lateral sclerosis (ALS) — a progressive neurodegenerative disease — in 1963. His doctors gave him approximately two years to live.

He lived for 55 more years, dying in March 2018 at age 76.

Hawking's survival far beyond typical ALS prognosis was medically unusual, likely aided by a slower-progressing form of the disease. For much of his life, he was almost completely paralyzed and communicated through a speech-generating device he controlled with a cheek muscle. Despite this, he produced groundbreaking work in theoretical physics and cosmology, wrote bestselling books, raised three children, and became one of the most recognized scientists in history.

Hawking's life is a testament both to extraordinary individual resilience and to the power of adaptive technology and support systems. He used cutting-edge assistive communication technology — developed in collaboration with Intel engineers — to write, give lectures, and engage with the world. His case helped transform public understanding of what is possible for people with severe physical disabilities.

ALS typically progresses faster than Hawking's case, with most patients living 2–5 years after diagnosis. But advances in treatment — including the drug riluzole and newer approvals like edaravone — are extending survival and improving quality of life.

By the Numbers

About 5,000 people in the U.S. are diagnosed with ALS each year. Average survival is 2–5 years after diagnosis, but 10% of patients live 10+ years.

You're not alone

About 5,000 Americans are diagnosed with ALS each year. The Ice Bucket Challenge in 2014 raised over $220 million for research and directly funded the discovery of new ALS genes.

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Sources & Further Reading

↗ ALS Association: About ALS↗ NIH: ALS Fact Sheet

All information in this article is sourced from public statements made by the celebrity or their representatives, and from government health agencies. My Sugar Pill does not provide medical advice. Always consult your healthcare provider.